the waiting game

We have been here a little more than a month and have been delayed twice. First, because Jacob was sick, and now because we had to find a new donor. Hopefully things will smooth out from here. We have finished up with all of Jacob's workups and he checks out to be in perfectly good health (except for CGD, of course). His lungs even looked better in the followup ct scan last Monday. The doctor said his immune system is fully recovered from last year's bone marrow transplant and she was impressed with how quickly and efficiently he cleared the viruses. It's hard starting all over again, but we have no other choice. We have to try. We pray that this time around he will be cured with no further complications and that next year he will begin to resume a normal life. As for next week, we only have one day of appointments and then hopefully he will be admitted on Saturday.