Saturday, June 02, 2012

Day +56

This week has been so fun having Ethan and Dan here visiting. I love how Jacob and Ethan don't even skip a beat. It's like they haven't been separated at all. I'm so grateful that they are best friends and that Ethan is an amazing big brother.

Yesterday we received some encouraging news on Jacob's latest chimerism. Both his myeloid and nk cells have remained 100% donor. His t cells grew from 76% donor cells last month to 80% donor cells now. And finally, his b cells went from 87% donor last month to 98% donor currently. If I may be so bold to say it, I think Jacob is going to hold onto his new marrow and be cured of cgd. Another chimerism will be done around day 80.

Other good news is that Jacob came off his nightly hydration infusion. The team wants to access his central line as little as possible and even talked about having it removed around day 90.

I am so grateful for our Father in Heaven's tender mercies. He has seen it fit to bless us so abundantly. We have an incredible, vigilant, top notch team of doctors and nurses. I could not imagine a more thorough, knowledgable, and caring team. We have the most amazing and supportive family and friends who have been with us every step of the way.

Here are pictures from our week with Dan and Ethan:

Bananas in Pajamas



Best Friends


Wendy said...

Yay! Good news! And I love seeing your boys together. Being seperated from one another is no fun...but worth it when Jacob is home for good!

Sharolyn said...

Wonderful News Kylene & Josh! It is so cute to see pics of your boys together having fun and enjoying each other! We love you and pray for you often! Glad to hear good news! -Sharolyn

Katie said...

This is such exciting news! I've been following your blog and your mom keeps me posted.