Tuesday, May 31, 2011
Dropping ANC and white blood cells
Sorry for the delay in posting an update. It’s easy to share joyful news, but hard to share our setbacks. Jacob’s GVH rash is pretty much gone, which is our good news. Now onto the bad news. Jacob is learning to take his oral medications. Some times he gets it down and keeps it down, other times we are not so lucky. Jacob is not interested in eating yet and he always falls far below our goal for liquid and caloric intake. Two nights ago Jacob’s cough started getting worse and his anc and white blood cell count have been dropping steadily the past five days. Six days ago his anc was 2580 and today it is 580. These symptoms are concerning to the doctor and ourselves because he seems to be fighting something. He hasn’t had any fever and his lungs sound clear, which could lead us back to the silent and sneaky fungal infection that the doctor suspected a couple of weeks ago. Jacob is getting a repeat CT scan today to see if the lung inflammation has gotten worse. If there are any large areas of inflammation, Jacob may have to get another lung biopsy to see if the doctors can identify the problem and treat it more specifically. He also had another sinus rinse this morning to see if they can identify a problem there.