Wednesday, March 02, 2011

Hospital Stay & Cardiology Followup

I can think of so many ways to describe Jacob. He is courageous, brave, kind, patient, long suffering, happy, resilient, caring, and so many other things. My two-year-old son is a good example to me of all of these characteristics. Watching him overcome trial after trial gives me strength and courage to take each day as it comes.

Monday he had an enlarged lymphnode surgically removed from his lung, and then had a colonoscopy on both ends. The lung biopsy required a drainage tube to be left in his side for about 24 hours to make sure he didn't get any swelling. The colonoscopy revealed that his colitis is back, not to the severity it was in '09, but nevertheless, his GI doctor may want to treat it with steroids again. Both procedures were successful, for which we are grateful. We got home yesterday evening and enjoyed sleeping in our own beds last night.

Today we had a followup with the cardiologist who determined that even with the small hole in Jacob's heart, his heart sounded good. He wants us to come in for an annual check up to make sure it doesn't get worse.

So, for now we are waiting to hear what the biopsy on the lymphnode reveals. If Jacob is indeed fighting some type of fungal infection, that will have to be treated and the bone marrow transplant will have to be put on hold. If it turns out to be benign, we will proceed with the BMT, depending on what the doctors decide to do about his colitis. They are in disagreement as to whether that needs to be treated first, or if the BMT is more urgent.

... One day at a time. We will post more when we hear the results of the biopsy.

We are grateful for everyone's continued faith and prayers in Jacob's behalf and have been touched by everyone's kind and encouraging words and deeds. We believe in the power of prayer and have felt added strength to get through each day.

1 comment:

Trisha said...

Hello! I stumbled upon your blog today while searching "BMT for CGD." Our 5 year old has CGD and will likely have a BMT this summer. We are in the process of deciding where to go for it. I just wanted to say hello and tell you that you guys will be in my thougts and prayers. Please feel free to contact me if you have any questions.